The CARE Down Syndrome Resource Library offers practical tools, tip sheets, and handouts designed to support primary care professionals in delivering high-quality care to individuals with Down syndrome.
Many of these resources are meant to be shared directly with patients and their families, helping to foster better communication, understanding, and collaboration. This library will continue to grow, with new materials added regularly to meet the evolving needs of both healthcare professionals and the Down syndrome community.
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This article provides an overview of the "groove," a phrase that has been used to describe a preference for sameness, repetition, and routine that many people with Down syndrome have.
This guidebook is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.
This course helps professionals and others who provide services and supports to adults with intellectual and developmental disabilities (IDD) understand the impact of trauma and equips them with strategies to recognize its signs, respond using trauma-informed practices, and help prevent re-traumatization.
This article contains practical strategies to help individuals with Down syndrome build new habits and routines by using gradual changes, visual supports, and personalized choices that align with their strengths and preferences.
This page contains information about staying hydrated and provides resources such as water tracking handouts and apps as well as visuals and videos about drinking water.
This article contains ideas to help adults with Down syndrome with blood draws.
This website contains information on Supported Decision-Making laws in the United States.
The article on urinary retention explains why this condition is more common in people with Down syndrome and describes symptoms, complications, and treatments.
This article outlines the benefits of visual supports for individuals with Down syndrome.
This page contains visuals about fruits and vegetables, grains, protein, and dairy.
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This website explains why Alzheimer's disease is more common in individuals with Down syndrome as well as research in the Down syndrome and Alzheimer's disease field.
This article provides an overview of self-talk, the groove, and other common characteristics of many people with Down syndrome.
This guidebook is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.
This resource provides comprehensive, evidence-based clinical guidelines to help healthcare professionals deliver personalized, high-quality primary care for adults with Down syndrome.
