Resource Library

The CARE Down Syndrome Resource Library offers practical tools, tip sheets, and handouts designed to support primary care professionals in delivering high-quality care to individuals with Down syndrome.

Many of these resources are meant to be shared directly with patients and their families, helping to foster better communication, understanding, and collaboration. This library will continue to grow, with new materials added regularly to meet the evolving needs of both healthcare professionals and the Down syndrome community.

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Health Conditions
  • Mental Health (16)
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  • Gastrointestinal (GI) System (4)
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  • Medical Visits (18)
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Displaying 1 - 10 of 94 results

Depression in People with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

This article gives an overview of depression in people with Down syndrome and provides guidance on assessment and treatment.

Diagnostic Overshadowing: “All Is Not Down Syndrome”

Advocate Medical Group Adult Down Syndrome Center

This article describes diagnostic overshadowing in people with Down syndrome. It occurs when a healthcare professional focuses primarily (or only) on the fact that the person has Down syndrome and de-emphasizes the possibility of a co-occurring, often treatable, health condition.

Dry Skin in People with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

This article explains why dry skin is common in people with Down syndrome and offers practical strategies for managing it.

Dual Diagnosis of Down Syndrome and Autism

National Down Syndrome Society

This page provides guidance on understanding autism in children with Down syndrome, including prevalence, evaluation steps, and next steps for families if a dual diagnosis is identified.

Dysphagia in People with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

The article discusses the causes and signs of swallowing issues in individuals with Down syndrome provides guidance on identifying symptoms, seeking evaluations, and using therapies or techniques to improve swallowing safety and nutrition.

Eating Refusal in Adults with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

The article explores causes of and treatments for eating refusal in individuals with Down syndrome, often linked to physical illness or psychological stress.

Emotion Flashcards

Virginia Commonwealth University - The HOPE Lab

A set of printable flashcards designed to support emotion recognition and vocabulary development through interactive activities like games and role-playing.

End-Of-Life and Down Syndrome

National Down Syndrome Society

A companion guidebook to NDSS’ Aging and Down Syndrome: A Health and Well-Being Guidebook, designed for caregivers supporting individuals with Down syndrome in late life and end-of-life, providing practical guidance on health management, palliative care, legal decisions, grief, and future planning.

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