The CARE Down Syndrome Resource Library offers practical tools, tip sheets, and handouts designed to support primary care professionals in delivering high-quality care to individuals with Down syndrome.
Many of these resources are meant to be shared directly with patients and their families, helping to foster better communication, understanding, and collaboration. This library will continue to grow, with new materials added regularly to meet the evolving needs of both healthcare professionals and the Down syndrome community.
Refine Results
The article explains that breast cancer is less common in women with Down syndrome, and recommends individualized screening decisions based on personal risk factors rather than universal mammogram guidelines.
A non-invasive, drug-free device that combines vibration and cold therapy to alleviate pain and anxiety associated with injections and medical procedures.
A guidebook that provides an overview of information regarding guardianship, creating a support plan, housing, and self-care for caregivers. In addition to parents, this tool is helpful for anyone who has recently become a caregiver of an individual with Down syndrome.
Visuals for individuals with Down syndrome about what celiac disease is, what foods are gluten-free, and how to eat gluten-free at parties and restaurants.
This article describes cerumen impaction, which is a buildup of ear wax that blocks the ear canal. It occurs more frequently in individuals with Down syndrome due to anatomical and skin differences, and may require medical or at-home treatments to relieve symptoms like hearing loss and discomfort.
This resource offers practical, age-specific medical care recommendations to support families in managing the health and development of individuals with Down syndrome.
This article explains that colon cancer is rare in individuals with Down syndrome, and routine screening may not be appropriate due to low risk and potential complications, with screening decisions best made on an individual basis considering personal and family history.
This article provides an overview of self-talk, the groove, and other common characteristics of many people with Down syndrome.
This article explains why constipation is more common in individuals with Down syndrome and provides an overview of steps to prevent and treat constipation.
This page contains a recording of a webinar presented by Brian Chicoine, MD, in which he provided an overview of possible causes of decline in skills in adolescents and adults with Down syndrome.
No Result Found
This website explains why Alzheimer's disease is more common in individuals with Down syndrome as well as research in the Down syndrome and Alzheimer's disease field.
This article provides an overview of self-talk, the groove, and other common characteristics of many people with Down syndrome.
This guidebook is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.
This resource provides comprehensive, evidence-based clinical guidelines to help healthcare professionals deliver personalized, high-quality primary care for adults with Down syndrome.
