Visuals for Medical Appointments
Advocate Medical Group Adult Down Syndrome CenterThis page provides links to visuals about going to the doctor, common procedures and tests, and other scenarios that may be experienced while receiving medical care
Resource Library
The CARE Down Syndrome Resource Library offers practical tools, tip sheets, and handouts designed to support primary care professionals in delivering high-quality care to individuals with Down syndrome.
Many of these resources are meant to be shared directly with patients and their families, helping to foster better communication, understanding, and collaboration. This library will continue to grow, with new materials added regularly to meet the evolving needs of both healthcare professionals and the Down syndrome community.
Guides & Links
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Weight Management in Adults with Down Syndrome
Advocate Medical Group Adult Down Syndrome CenterThis article provides an overview of factors that can affect the weight of people with Down syndrome and shares strategies for achieving and maintaining a healthy weight.
Why Primary Care Practitioners Aren’t Joining Value-Based Payment Models: Reasons and Potential Solutions
The Commonwealth FundThis article explores the barriers preventing primary care professionals from participating in value-based payment (VBP) models and offers recommendations to enhance their involvement.
Women’s Health & Down Syndrome
National Down Syndrome SocietyThis website shares information about important aspects of women's health for adults with Down syndrome including gynecological exams, menstration, and menopause.
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Alzheimer’s Disease in People With Down Syndrome
National Institute on AgingThis website explains why Alzheimer's disease is more common in individuals with Down syndrome as well as research in the Down syndrome and Alzheimer's disease field.
Common Characteristics of Adolescents and Adults with Down Syndrome
Advocate Medical Group Adult Down Syndrome CenterThis article provides an overview of self-talk, the groove, and other common characteristics of many people with Down syndrome.
The Primary Care Provider’s (PCPs) Guide to Women’s Health and Down Syndrome
National Down Syndrome SocietyThis guidebook is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.
GLOBAL Medical Care Guidelines for Adults with Down Syndrome
Global Down Syndrome FoundationThis resource provides comprehensive, evidence-based clinical guidelines to help healthcare professionals deliver personalized, high-quality primary care for adults with Down syndrome.