Resource Library

The CARE Down Syndrome Resource Library offers practical tools, tip sheets, and handouts designed to support primary care professionals in delivering high-quality care to individuals with Down syndrome.

Many of these resources are meant to be shared directly with patients and their families, helping to foster better communication, understanding, and collaboration. This library will continue to grow, with new materials added regularly to meet the evolving needs of both healthcare professionals and the Down syndrome community.

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Health Conditions
  • Mental Health (16)
  • Alzheimer's Disease (7)
  • Decline in Skills (6)
  • Down Syndrome Regression Disorder (3)
  • Menopause (3)
  • Pain (3)
  • Puberty (3)
  • Autoimmune Diseases (1)
  • Celiac Disease (1)
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Body Systems
  • Gastrointestinal (GI) System (4)
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  • Sensory System (3)
  • Endocrine System (2)
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Health Promotions
  • Medical Visits (18)
  • Medical Care (Health Screening, Tests and Procedures) (15)
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Resource Types
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Displaying 1 - 10 of 89 results

Accessible Chef

Accessible Chef

A collection of free visual recipes and other resources to help teach cooking skills to individuals with disabilities at home.

Addressing Challenges with Falling or Staying Asleep

Advocate Medical Group Adult Down Syndrome Center

This article offers practical strategies to help individuals with Down syndrome improve sleep quality and addresses sleep hygiene, relaxation and sensory techniques, and medications.

Affordable Sensory Equipment

Advocate Medical Group Adult Down Syndrome Center

This page provides suggestions of affordable items that can be used for sensory regulation.

Aging and Down Syndrome: A Health and Wellbeing Guidebook

National Down Syndrome Society

A resource for families and professionals with a focus on aging and health-related matters in individuals with Down syndrome such as common medical conditions, Alzheimer's disease, and mental health.

Atlantoaxial Instability in People with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

This article describes atlantoaxial instability (AAI), a problem with the cervical vertebrae that is more common in individuals with Down syndrome and may require surgical treatment if symptomatic.

Breast Cancer Screening for Women with Down Syndrome

Advocate Medical Group Adult Down Syndrome Center

The article explains that breast cancer is less common in women with Down syndrome, and recommends individualized screening decisions based on personal risk factors rather than universal mammogram guidelines.

Buzzy Device

Buzzy

A non-invasive, drug-free device that combines vibration and cold therapy to alleviate pain and anxiety associated with injections and medical procedures.

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